Dementia- It’s more than loss. There is JOY!

A visual sometimes shared by Teepa Snow and the Positive Approach to Care® (PAC) community in trainings is a donut. Why? This donut is a reminder: in the world of brain change and dementia we often focus on the hole, what is lost, while forgetting to see all that remains.

When we look at the colorful whole of the donut what do we see? How does our perspective shift? For me, there is a whole lot of color, space. How about for you?

Scenario 1:

Someone living with Lewy Body Dementia who usually functions between an Amber and Ruby GEMS® state, but like all of us humans, her rhythms fluctuate. If you referenced many of the dementia rating scales typically used, she would likely be placed in the “later stages.” But this is where those labels can do us a disservice and cause us to miss meaningful moments.

Does this individual “make sense” in traditional terms of language and communication? No. But does she crave connection, relationship, and belonging? YES. So what does my time with her look like? Reflecting back her words. Meeting her where she is in how she is processing language in that moment. To an outsider, our “conversations” might make no sense at all. But if there were no sound, what you would see is smiling, laughter, ease-CONNECTION. JOY!

Scenario 2:

Someone living with Alzheimer’s type dementia who usually functions between a Diamond and Emerald GEMS® state, but again, this fluctuates (think of when you may not have gotten enough sleep or have not eaten in a while-what is your brain state like in those moments?). We all have rhythms and changing brain states throughout the day.

This individual struggles with word finding, sustained attention, and cognitive overload. During one of our sessions, upon my arrival she exclaimed, “I have an idea. Let’s make banana bread!” “YES!” I said. What happened from there? No notable word-finding challenges, the ability to sustain attention for over 30 minutes, dual tasking: mixing while having a conversation. Were there adaptations and supports? Yes. But was she able to make banana bread and experience purpose, connection, and joy? Also YES.

Something important for me (or anyone who supports this person) to know: she used to bake all the time. It was her love language. But given challenges with executive function (e.g., following a recipe) and short-term memory (e.g., “Did I put that ingredient in already?”), she has not baked in quite some time. This moment illustrated that with the right supports and a little patience, she could reconnect with something she loves, and in doing so, experience joy, purpose, and meaningful connection.

So, to circle back the to colorful donut- when we look at the whole donut, not just the hole, it opens us up to what remains and shifts the experience for everyone. It allows for the JOY!

PAC™disclaimer: PAC™ Certified Dementia Educators (PAC CDE/L) are not employees of Positive Approach, LLC. The opinions and views expressed by PAC™ Certified Dementia Educators (PAC CDE/L) do not necessarily reflect the opinions and views of Positive Approach, LLC or any of its employees. Positive Approach, LLC is not liable for any actions by PAC™ Certified Dementia Educators (PAC CDE/L)

Why Skilled Care in Dementia Matters

Skilled Dementia Care: What Does It Really Mean?

When you hear the phrase “skilled dementia care,” what comes to mind?

For me, I thought I knew exactly what it meant until I went through my certifications in Teepa Snow’s Positive Approach to Care® (PAC). Those trainings completely changed my perspective. The skills I learned weren’t just interesting, they were the kind of “ah-ha” moments that totally change you. Those moments where all the pieces truly start to fall into place. You can immediately relate them to situations you have encountered and see how you can use these new found skills going forward.

A Little About Me

My name is Colleen Nolan, and I’m a certified speech-language pathologist (SLP) with more than 20 years of experience. Before stepping into the dementia space, I worked primarily in pediatrics supporting children with disabilities and those who are neurodivergent.

When I made the shift to dementia care, I immediately noticed something familiar: many individuals who struggled to express themselves resorted to behaviors to communicate. Even those who could still speak were not always making sense because the parts of the brain responsible for language processing and speech were, well, dying. What often followed? Behaviors that many of us misinterpret. Moments of distress.

My message as an SLP has always been “all behavior is communication,” and I’ll be honest, I often misinterpreted too. Despite my background and training, there were moments I found myself misunderstanding, mislabeling, and sometimes even causing unintentional harm. Not because I didn’t care, but because I didn’t have the right tools.

That’s the thing, isn’t it? Most of us never set out to cause harm, but without the right knowledge, training, and skill, it can happen.

Why PAC™Training Was Different

Most of my past continuing education courses followed the same formula: hours-long lectures, slides, and theory. Rarely any practical skills training. PAC™ training was different.

It was active, hands-on, and practical.

• Minimal lecture, maximum practice.

• In-the-moment role play.

• Repetition and feedback.

• Real-life application with video review and mentoring before receiving certification.

This approach didn’t just give me knowledge, it built skills I could actually use in my work with people living with dementia and their care partners. And now, my goal is to pass those skills along to others because the current culture of care needs to shift.

Let’s Look at a Real-Life Example

Here’s an example of a common story I might hear from care partners:

“She gets so agitated and angry with me. I go into her room to wake her up and she immediately starts screaming. I speak calmly, stroke her hair, and tell her she’s safe, but she hits me! I tell her, ‘It’s me, your daughter,’ and she insists she doesn’t have a daughter and tells me to get out of her house.”

Oof! Can you relate? When you read this, do you think the daughter is trying to cause harm? Of course not. She loves her mom and is doing her best.

She has awareness that what she is doing isn’t working. But what’s missing? Knowledge and skill.

Same Scenario, More Skill

Here’s how that same moment might play out when the daughter has some training in PAC™:

“I knocked on mom’s door and called her name like you suggested. When she didn’t respond, I walked toward the bed, knelt down at arm’s distance, and called her name again. When she still didn’t respond, I placed my flat hand with gentle pressure on her knee joint. When her eyes opened, I said, ‘Hey Alice (pause). It’s Jane (pause). [pointing].’ I gave her a moment to acclimate. Then I pointed to the window: ‘Ooo, Alice (pause), it’s morning (pause).’ Next, I showed her the robe: ‘I got your robe (pause). Want to put it on? (pause) Or use the bathroom first?’”

Do you see the difference?
The daughter is now equipped with a process, a rhythm, and practical skills that honor her mom’s reality instead of colliding with it.

Why It Matters

That’s the heart of skilled dementia care. It’s not just about being calm, kind, or patient. Those things are important, but unfortunately they’re not enough. Skilled dementia care is about learning and practicing specific techniques that actually work with a changing brain.

And it matters across all situations: skilled care communities, hospitals, doctor visits. If everyone involved in the care of the person living with dementia has a basic level of skill in how to adapt and adjust interactions and communication; how to see behavior as communication of an unmet need; how to pause, reflect, the ripple effect would be unmistakable- less distress, more ease.

It’s about moving from frustration and conflict to connection and cooperation. It’s about putting relationship first.

And it’s about giving care partners the confidence that they can do this and they don’t have to do it alone.

PAC disclaimer:

PAC Certified Independent Trainers&Consultants are not employees of Positive Approach, LLC.

The opinions andviews expressed by PAC Certified Independent Trainers&Consultants do not necessarily reflect the opinions and views of Positive Approach, LLC or any of its employees.  Positive Approach, LLC is not liable for any actions by PAC Certified Independent Trainers&Consultants.